Feb 19, 2020
SYNOPSIS
Marketing RV with Ranalli & Volpe continues to delve into CFF’s
Venture Philanthropy approach to fund raising. We carried into this
episode the discussion of the Delaware Valley chapter’s unique
business development and marketing discussion with Executive
Director Jessica Wickersham and Senior Development Director Vanessa
Deussing.
If you missed Episode 042, check it out to get the background on the strides this 65-year-old organization has made as it looks to a day when it might no longer be needed. Until It’s Done! is the CFF motto. Jessica and Vanessa explained why they look forward to the day when they are laid off because they are no longer needed.
You will learn about Trikafta, an amazing breakthrough drug treatment that has been approved by the FDA for people 12 and older. This drug appears to be 90% effective. CFF is looking for a half-billion dollars to pave the path to a cure. Jessica and Vanessa explained what is entailed and how their guerrilla marketing efforts will get them to the goal.
Enjoy this episode, share it with your network, and please follow Marketing RV, Gene, and Lorraine on your favorite social platform. If you’d like to be a guest on the show or if your business would like to sponsor and host Marketing RV, contact us here.
HIGHLIGHTS
01:11 Spheres of influence
02:03 Navigating Corporate Social
Responsibility
03:48 PNC’s local connection to CFF
05:03 The six feet rule
07:55 Help for families dealing with CF
08:59 Compass
11:00 Big plans for the 65th Anniversary Year of
CFF
15:23 Path to a cure, a $500,000,000 venture
17:15 Trikafta success stories
22:28 What happens when CF is eradicated?
23:39 Besides $, what you can do to help.